Governments have declared the practice a human rights violation. But they have made exceptions that are divisive among parents, doctors and social workers.
They all have a 50-50 chance of inheriting a terrible genetic mutation — which means disappearing into dementia in middle age. This is the story of what it’s like to live with those odds.
An eighth grader was asked to leave Saint Ann’s, a prestigious private school in Brooklyn. Three months later, he ended his life. Now his parents are suing the school.